If you were to meet Samuel, I’d ask just a few things of you.
Whether he is sleeping, awake, or even on his food pump, come over to him and hold his hand. Samuel is good at holding hands. Stroke his hands and look at his beautiful little fingers.
Stroke his hair and feel how soft it is and see what a lovely blonde colour it is.
Talk to him. Tell him about yourself. He may not obviously react to you, but I’m sure he would know you were there. Chat to him.
If you can, give him a cuddle. Scoop him up and bring him into you. Listen to him purr as he leans into you. Feel the warmth of his cuddly little body.
If he has a seizure while he is in your arms, just pull him in closer to you. Let him feel safe and loved. The is the best of all his medicines.
If you get to have a Samuel cuddle, you’ll quickly understand how powerful his cuddles truly are and I promise you, he will touch your heart.
But please don’t look at him with sadness. He is so very loved and I believe in his own way he is a very content and happy little fellow.