I love stars. I always have. And then we had Samuel. It became clear pretty quickly that we might lose him. I don’t think the doctors thought he would survive his epilepsy, especially as they were struggling to find the right concoction of medicines to go somewhere near to managing his seizures (it’s impossible to control Samuel’s epilepsy, we just manage his breakthrough (physical) seizures).
Look at the stars, look how they shine for you
There was lots of talk in the early times of ‘family time’ and we were encouraged to enjoy Samuel to the full as his time was expected to be very limited. So I looked to the stars. I remember in those dark early days of looking at the stars and saying to myself that if we did lose him, Samuel would become one of the brightest stars in the sky. Even if he wasn’t here with us on earth, he would always be shining above us in the sky. And that made me love stars even more. I thought that as long as there were stars in the sky, Samuel will always be with us. Forever.
Yeah we all shine on, like the moon and the stars and the sun
Samuel will always be our star.