And now if you look at the sky on a clear night, you will see Samuel shining brightly.
I love stars. I always have. And then we had Samuel. It became clear pretty quickly that we might lose him. I don’t think the doctors thought he would survive his epilepsy, especially as they were struggling to find the right concoction of medicines to go somewhere near to managing his seizures (it’s impossible to control Samuel’s epilepsy, we just manage his breakthrough (physical) seizures).
Look at the stars, look how they shine for you
There was lots of talk in the early times of ‘family time’ and we were encouraged to enjoy Samuel to the full as his time was expected to be very limited. So I looked to the stars. I remember in those dark early days of looking at the stars and saying to myself that if we did lose him, Samuel would become one of the brightest stars in the sky. Even if he wasn’t here…
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Tricky Customer 