So we ‘ve done it, Samuel has now started the Ketogenic Diet. As I write this, Samuel’s ketone levels are now just inside the therapeutic range, so we are heading in the right direction.
I’ve written before about how much hope I have for it to work. Even if it means we can just take him off one medicine. With all his physical ‘break through’ seizures he has combined with the seizures we don’t see (I may never have told you that he has seizures in his brain that don’t show physically), I always think it must be very bright and noisy in his brain, so even if the diet can just turn down the volume in his brain just a little, that would be wonderful.
My husband said today that he hopes, along with reduced seizure activity, the new diet lets part of his brain develop and we finally get smiles from Samuel. Just the odd smile now and again would mean the world and more to us.
But while we are all full of hope, we do feel like celebrating too. Celebrating the fact we have been given this chance. Samuel has been given this chance. Who knows what will happen. While I’m trying to be cautiously optimistic (in case it doesn’t work), I’m also so excited!
Whatever happens, the Ketogenic Diet has given Samuel, has given us all a chance and I think that is most definitely worth celebrating.
This post is part of the Celebrate Blogging Challenge. This world of special needs and disabilities has many rocky roads, we will find ourselves on many rollercoasters along the way. But, there are a lot of positives. Through our adventures so far, we have met a lot of amazing, supportive people. It has made us stronger. We have learned to look at the world through new, wider eyes and find ourselves celebrating what to others may seem such a small achievement but to us, it’s the world. It’s a tough world, but there is so much to celebrate. Our children. So please join me each week and post about what there is to celebrate in your world during the past week. I’m looking forward to reading your posts and celebrating with you.
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My previous ‘Celebrate’ blog hop posts: